I have been thinking of writing this blog for some time. Almost since I learned my dear friend Laurie has RSD, Reflexive Sympathetic Dystrophy, a condition that in its own way is as devastating as Alzheimer's Disease. As I have watched Laurie deal with RSD, my admiration of her has grown.
What is this condition? Well, that is what I hope to tell as I write this blog. I will be studying the condition and the people who have it. I will offer interviews from people with RSD and family members who so often misunderstand the problems associated with it. And other family members who are looking for ways to help their loved ones who have RSD.
As for today's first post, I simply want to talk about Laurie, who has recently learned that RSD has spread through her entire body. My friend lives in daily pain from the disorder. It is her constant companion. She has trouble sleeping from the pain, and awakens again to pain. A small bump or bruise may be completely ignored by us, but for Laurie it causes excruciating, lasting pain.
Laurie's calling is to help others who are less fortunate. While she not only struggles with pain, she works hard to hide the pain. She does not want the focus to be on her, rather the people she is trying to help. People who are suffering in ways of their own.
Her prognosis is not a positive one as there is no cure for this condition. There are pain management and procedures, many not covered insurance. She seems to be between a rock and a hard place, yet she continues to strive for as normal a life as possible.
Today I dedicate my first blog on RSD to Laurie. The first of the faces of RSD I will profile in this format. Click here to learn more about RSD.
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